{"id":2218,"date":"2025-05-12T16:47:00","date_gmt":"2025-05-12T16:47:00","guid":{"rendered":"https:\/\/readmore.cx\/?p=2218"},"modified":"2025-05-12T16:47:00","modified_gmt":"2025-05-12T16:47:00","slug":"siblings-share-heartbreaking-story-of-sisters-early-onset-dementia-at-31","status":"publish","type":"post","link":"https:\/\/readmore.cx\/?p=2218","title":{"rendered":"Siblings Share Heartbreaking Story Of Sister\u2019s Early-Onset Dementia At 31"},"content":{"rendered":"<p><strong>She\u2019required a bit more help\u2019 instead of having such a \u2018horrendous condition,\u2019 according to the family of a lady who died after being diagnosed with a rare form of dementia.<\/strong><\/p>\n<div class=\"code-block code-block-3\">\n<div id=\"ezoic-pub-ad-placeholder-122\" data-ezoic-video-excluded=\"1\"><\/div>\n<\/div>\n<p>At the age of just 28, Gemma Illingworth of Manchester received a diagnosis of posterior cortical atrophy (PCA), an uncommon type of dementia, in 2021.<\/p>\n<div class=\"code-block code-block-7\">\n<div id=\"ezoic-pub-ad-placeholder-103\" data-ezoic-video-excluded=\"1\"><\/div>\n<\/div>\n<p>According to <a href=\"https:\/\/memory.ucsf.edu\/dementia\/posterior-cortical-atrophy\">USCF<\/a>, PCA, also known as Benson\u2019s syndrome, is a rare visual form of Alzheimer\u2019s disease.<\/p>\n<div class=\"code-block code-block-22\">\n<div id=\"ezoic-pub-ad-placeholder-123\" data-ezoic-video-excluded=\"1\"><\/div>\n<\/div>\n<p><strong>\u201cIt affects areas in the back of the brain responsible for spatial perception, complex visual processing, spelling and calculation,\u201d<\/strong> it states.<\/p>\n<p>Gemma lost the ability to see, swallow, speak, and walk after receiving her diagnosis, and she died on November 27, 2024, at the age of 31.<\/p>\n<p>In an effort to increase vital knowledge, her siblings, who recently participated in the London Marathon in her honour, have since talked candidly about her struggle with the illness.<\/p>\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-large\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-38112\" src=\"https:\/\/dailypositiveinfo.com\/wp-content\/uploads\/2025\/05\/image-328-1024x574.png\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" srcset=\"https:\/\/dailypositiveinfo.com\/wp-content\/uploads\/2025\/05\/image-328-1024x574.png 1024w, https:\/\/dailypositiveinfo.com\/wp-content\/uploads\/2025\/05\/image-328-300x168.png 300w, https:\/\/dailypositiveinfo.com\/wp-content\/uploads\/2025\/05\/image-328-768x430.png 768w, https:\/\/dailypositiveinfo.com\/wp-content\/uploads\/2025\/05\/image-328-1536x861.png 1536w, https:\/\/dailypositiveinfo.com\/wp-content\/uploads\/2025\/05\/image-328.png 2000w\" alt=\"\" width=\"1024\" height=\"574\" \/><figcaption class=\"wp-element-caption\"><em>Source: <a href=\"https:\/\/www.freepik.com\/free-ai-image\/close-up-mexican-altar_133597219.htm#fromView=search&amp;page=1&amp;position=24&amp;uuid=416f8a67-c4d7-4232-9574-120955a654e0&amp;query=CEMETRY\">Freepik<\/a><\/em><\/p>\n<h2 class=\"wp-block-heading\">What posterior cortical atrophy is and Gemma\u2019s early symptoms of it<\/h2>\n<p>Although the Alzheimer\u2019s Association <a href=\"https:\/\/www.alz.org\/alzheimers-dementia\/what-is-dementia\/types-of-dementia\/posterior-cortical-atrophy\">notes<\/a> it\u2019s \u2018not known whether posterior cortical atrophy is a unique disease or a possible variant form of Alzheimer\u2019s disease\u2019, UCSF states: <strong>\u201cIn the vast majority of PCA cases, the underlying cause is Alzheimer\u2019s disease, and the brain tissue at autopsy shows an abnormal accumulation of the proteins amyloid and tau that form the plaques and tangles seen in Alzheimer\u2019s disease.\u201d<\/strong><\/p>\n<p>According to the article, the condition\u2019s initial symptoms can <strong>\u201cinclude blurred vision, difficulties reading (particularly following the lines of text while reading) and writing with non-visual aspects of language preserved, problems with depth perception, increased sensitivity to bright light or shiny surfaces, double vision, and difficulty seeing clearly in low light conditions.\u201d<\/strong> These symptoms are frequently what prompt a patient to see an eye doctor.<\/p>\n<p>Additional symptoms may include misrecognition of familiar individuals and objects, trouble precisely <strong>\u201cstretching out to pick up an object\u201d<\/strong>; becoming <strong>\u201clost when driving or strolling in familiar settings, and infrequently, visual hallucinations\u201d<\/strong> in addition to coordinated movements.<\/p>\n<\/figcaption><\/figure>\n<\/div>\n<div class=\"pvc_clear\"><\/div>\n<p id=\"pvc_stats_2218\" class=\"pvc_stats total_only  \" data-element-id=\"2218\" style=\"\"><i class=\"pvc-stats-icon medium\" aria-hidden=\"true\"><svg aria-hidden=\"true\" focusable=\"false\" data-prefix=\"far\" data-icon=\"chart-bar\" role=\"img\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 512 512\" class=\"svg-inline--fa fa-chart-bar fa-w-16 fa-2x\"><path fill=\"currentColor\" d=\"M396.8 352h22.4c6.4 0 12.8-6.4 12.8-12.8V108.8c0-6.4-6.4-12.8-12.8-12.8h-22.4c-6.4 0-12.8 6.4-12.8 12.8v230.4c0 6.4 6.4 12.8 12.8 12.8zm-192 0h22.4c6.4 0 12.8-6.4 12.8-12.8V140.8c0-6.4-6.4-12.8-12.8-12.8h-22.4c-6.4 0-12.8 6.4-12.8 12.8v198.4c0 6.4 6.4 12.8 12.8 12.8zm96 0h22.4c6.4 0 12.8-6.4 12.8-12.8V204.8c0-6.4-6.4-12.8-12.8-12.8h-22.4c-6.4 0-12.8 6.4-12.8 12.8v134.4c0 6.4 6.4 12.8 12.8 12.8zM496 400H48V80c0-8.84-7.16-16-16-16H16C7.16 64 0 71.16 0 80v336c0 17.67 14.33 32 32 32h464c8.84 0 16-7.16 16-16v-16c0-8.84-7.16-16-16-16zm-387.2-48h22.4c6.4 0 12.8-6.4 12.8-12.8v-70.4c0-6.4-6.4-12.8-12.8-12.8h-22.4c-6.4 0-12.8 6.4-12.8 12.8v70.4c0 6.4 6.4 12.8 12.8 12.8z\" class=\"\"><\/path><\/svg><\/i> <img loading=\"lazy\" decoding=\"async\" width=\"16\" height=\"16\" alt=\"Loading\" src=\"https:\/\/readmore.cx\/wp-content\/plugins\/page-views-count\/ajax-loader-2x.gif\" border=0 \/><\/p>\n<div class=\"pvc_clear\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>She\u2019required a bit more help\u2019 instead of having such a \u2018horrendous condition,\u2019 according to the family of a lady who died after being diagnosed with a rare form of dementia. At the age of just 28, Gemma Illingworth of Manchester received a diagnosis of posterior cortical atrophy (PCA), an uncommon type of dementia, in 2021&#8230;.<\/p>\n<p class=\"more-link-wrap\"><a href=\"https:\/\/readmore.cx\/?p=2218\" class=\"more-link\">Read More<span class=\"screen-reader-text\"> &ldquo;Siblings Share Heartbreaking Story Of Sister\u2019s Early-Onset Dementia At 31&rdquo;<\/span> &raquo;<\/a><\/p>\n<div class=\"pvc_clear\"><\/div>\n<p id=\"pvc_stats_2218\" class=\"pvc_stats total_only  \" data-element-id=\"2218\" style=\"\"><i class=\"pvc-stats-icon medium\" aria-hidden=\"true\"><svg aria-hidden=\"true\" focusable=\"false\" data-prefix=\"far\" data-icon=\"chart-bar\" role=\"img\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 512 512\" class=\"svg-inline--fa fa-chart-bar fa-w-16 fa-2x\"><path fill=\"currentColor\" d=\"M396.8 352h22.4c6.4 0 12.8-6.4 12.8-12.8V108.8c0-6.4-6.4-12.8-12.8-12.8h-22.4c-6.4 0-12.8 6.4-12.8 12.8v230.4c0 6.4 6.4 12.8 12.8 12.8zm-192 0h22.4c6.4 0 12.8-6.4 12.8-12.8V140.8c0-6.4-6.4-12.8-12.8-12.8h-22.4c-6.4 0-12.8 6.4-12.8 12.8v198.4c0 6.4 6.4 12.8 12.8 12.8zm96 0h22.4c6.4 0 12.8-6.4 12.8-12.8V204.8c0-6.4-6.4-12.8-12.8-12.8h-22.4c-6.4 0-12.8 6.4-12.8 12.8v134.4c0 6.4 6.4 12.8 12.8 12.8zM496 400H48V80c0-8.84-7.16-16-16-16H16C7.16 64 0 71.16 0 80v336c0 17.67 14.33 32 32 32h464c8.84 0 16-7.16 16-16v-16c0-8.84-7.16-16-16-16zm-387.2-48h22.4c6.4 0 12.8-6.4 12.8-12.8v-70.4c0-6.4-6.4-12.8-12.8-12.8h-22.4c-6.4 0-12.8 6.4-12.8 12.8v70.4c0 6.4 6.4 12.8 12.8 12.8z\" class=\"\"><\/path><\/svg><\/i> <img loading=\"lazy\" decoding=\"async\" width=\"16\" height=\"16\" alt=\"Loading\" src=\"https:\/\/readmore.cx\/wp-content\/plugins\/page-views-count\/ajax-loader-2x.gif\" border=0 \/><\/p>\n<div class=\"pvc_clear\"><\/div>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2218","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"a3_pvc":{"activated":true,"total_views":55,"today_views":0},"_links":{"self":[{"href":"https:\/\/readmore.cx\/index.php?rest_route=\/wp\/v2\/posts\/2218","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/readmore.cx\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/readmore.cx\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/readmore.cx\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/readmore.cx\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2218"}],"version-history":[{"count":1,"href":"https:\/\/readmore.cx\/index.php?rest_route=\/wp\/v2\/posts\/2218\/revisions"}],"predecessor-version":[{"id":2219,"href":"https:\/\/readmore.cx\/index.php?rest_route=\/wp\/v2\/posts\/2218\/revisions\/2219"}],"wp:attachment":[{"href":"https:\/\/readmore.cx\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2218"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/readmore.cx\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=2218"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/readmore.cx\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=2218"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}